People with spinal cord injury, particularly high level ones, are vulnerable to . As a result, countless studies don’t go through to the clinic, for all the reasons mentioned in our open letter. Below is a recent interview Kate Willette and Matthew Rodreick conducted with Corinne Jeanmaire of the endParalysis Foundation in Europe. This could aim at, as mentioned by one researcher during the event, the “construction – instead of (re)construction – of circuitry.”. A legacy gift to the Perry Cross Spinal Research Foundation will help us continue the journey to discover a cure for paralysis and its many complexities. The awareness day helps people to understand why and how spinal cord injuries affect people, and what treatment and care is available and needed. The least we can do is to increase awareness and to demand more focus on regenerative research for chronic SCI. Now more than ever we are reminded of the importance of research as the world faces the COVID-19 pandemic. It is about making the impossible, possible. We are aware of the significance of the situation and. And we can do much more. Compensatory measures and small improvements like the ones offered by robotics and e-stimulation are not enough. SCI 2020 Cure spinal cord injury research. Now that the need for an increased focus on chronic regenerative research has been duly agreed during the meeting, I would ask the NIH (and other funding bodies across the world) to act upon that agreement by applying a funding criteria in favor of clinically relevant and chronic pre-clinical studies to obtain a fair balance between chronic and acute. I am not a scientist, but I have been following SCI research for over a decade. Spinal Cord Injury Awareness Day 2020 is held on May 15th. People with spinal cord injury, particularly high level ones, are vulnerable to, This is a difficult time as we collectively move to stop the spread of COVD-19. It is now a question of when, not if. What next steps would you take if you were in charge? e-stim) should be tested in a coordinated and focused way, rather than ad hoc. Each injury and its effects can be unique to the sufferer and depends on the cause, circumstances and how quickly the injury is treated. However, launching/facilitating incentive prizes to support some of the above-mentioned goals might be a relevant approach. When reading the agenda of the SCI 2020 meeting, it struck me that it was not representative of the SCI Community’s needs: innovative regenerative research in the context of chronic SCI was not on the agenda. I think the following items have been discussed but should be re-confirmed as priorities: Your letter mentions “an environment; an ecosystem and/or the setup of a flexible roadmap that will ease the development and testing of cutting-edge combination therapies…?” Can you describe in more detail what that environment/ecosystem might look like? disruptive) regeneration goals. Dr. Bydon is quick to note that responses may range—two of the ten trial patients did not respond to the treatment and others varied in their progress. You took a big step last December and published an open letter to Lyn Jakeman of the NIH, one of the principal organizers of the gathering. While there have been many blockades to the belief that spinal cord injury can be cured, many of these mental obstacles have been overcome, and hopefully, in the near future, we can say that a cure for spinal cord injury has been achieved. Deputy Premier and Treasurer Jackie … The day aims to raise the profile of spinal injuries and increase awareness and understanding of spinal cord injuries … on a structural level, a critical enabler needs to be acted upon. My own professional experience taught me that if you don’t ask the right questions, you are very unlikely to find the right solutions. Corinne is a dynamic and vocal activist in the international SCI Community who sent an open letter to Lyn Jakeman at the NIH ahead of the conference detailing her concerns. Hughes, J. T. (1988). References 1. Also, based on the event live-stream, it seems to have increased the awareness of most meeting participants of the critical need for more focus on chronic SCI. The environment I refer to would aim for a more business-like or/ goal-driven approach and could be introduced alongside the NIH’s traditional grant system. Published February 26, 2020 March 5, 2020 Author Christen Hill. Dr Indra Neil Choudhury was recently, PCSRF is proud to announce that a research spin-off by the Spinal Injury Project team at Griffith University has been awarded the prestigious Marshall and, World-leading Griffith University research into the development of a cell-based therapy for treating spinal cord injuries has received a $5.7 million boost from the Queensland, In an effort to save people from spinal cord injuries or worse, this campaign encouraged sensible behaviour over the 2019-2020 summer and highlighted the risks, Community support is so important for a small charity like ours. This annual awareness event is arranged by the Spinal Injuries Association in conjunction with other charities. What do you see as the role of our community in the project? This is welcome news for many who suffer spinal injuries, particularly patients with myelomalacia. SCI 2020 Disruption in research to cure spinal cord injury. The disruption aspect was, in my opinion, not addressed. Especially if we are committed to introducing a decade of DISRUPTION in SCI research! Spinal injuries continue to be researched for treatment and cure, and in some cases it is possible to recover the use of the limbs and regain some activities, it depends on the injury, but usually it is a lifelong injury. Deputy Premier Jackie Trad with researchers including Dr Mo Chen and Associate Professor Jenny Ekberg. I believe that all funding bodies – including the NIH – can and should change that by using funding criteria such as clinical relevance and chronic focus. It carries messages from the brain to the rest of the body, affecting walking, breathing, movement, blood pressure and control of the bowels and bladder. The spinal cord runs from the brain down to the pelvis. Secondly, since Lyn Jakeman said “the goal is really to NOT do things the way we used to do,” I would ask the NIH whether they consider facilitating the introduction of a more goal-driven environment, possibly under the form of a 3.0 project, to establish and implement a flexible roadmap to one or two key recovery goals for chronic SCI. Select your desired option below to share a direct link to this page. I believe that we, the SCI Community, are all “in charge” in a way. A goal-driven and integrative approach, from bench to market (multi-functional teams that include researchers, clinicians, patients, and market representatives) to ensure the clinical and market relevance of research projects; Increased and optimized data sharing (both positive and negative results), in a virtual network/platform using modern digital technologies; The establishment of a flexible roadmap focusing on specific targets, such as: key functional recovery goals as mentioned earlier. What were your impressions of the SCI 2020 Meeting, assuming you watched the event on the live-stream?

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